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Posts Tagged ‘Chemotherapy’

A. POOKIE’S ADVENTURES IN THE ENCHANTED FOREST:

These are gloomy days. Moody skies cover the Enchanted Forest as the winter storms pass over the Great Valley. Threatening they may look, but they leave behind only a ceaseless cold drizzle and little silver droplets on the branches of the trees — the only bright spot in the muted and silent landscape. I assume the storms reserve their wrath for the mountains depositing layers of new snow to the delight of skiers and those who fret about reservoir levels.

My mood is bleak also. There are three daggers aimed at me now. My cancer of course, but also an enhanced threat of infection and a shut down of my ability to pee threatening irreparable damage to my kidneys.

Naida had a bad cold. We walk around the house with masks on, wash our hands constantly and I try to avoid touching places she has touched as though…well, as though a dread disease lurks there — which of course it does. As Rosanna Rosannadanna says, “It’s always something.” And, at my age, that is probably truer than ever.

My daughter Jessica is in San Francisco, thanks in part to the government shutdown and to attend a funeral she is hesitant to talk about. I am very excited to see her. It has been a long time, perhaps two years, maybe more.

(Note: As I type this, I am also watching a movie about Giant carnivorous rabbits attacking a town in the western US. This has got to be the nadir of my existence.)

During the past few days, a lot of the usual annoyances of life sped by — towing my car and the rush to get it out of the pound, confusing discussions with pharmacists and medical professionals, and so on. Naida remains sick, Trump remains not my president, life continues as it usually does until it doesn’t, and I find myself unusually bored. But, tomorrow is another day (Scarlett O’Hara).

On Sunday, my daughter Jessica arrived. She drove up from San Francisco to see me. Seeing her after almost three years made me very happy. It has been too long. She looks well. She’s recovering from a series of concussions she experienced playing soccer over the years. The concussion injury to her brain caused several perception and other problems. We talked about our various maladies and other things. He Who is Not My President’s governmental shutdown has had one good result, my daughter, furloughed by the shutdown, was able to return to California and visit with me.

It is now Tuesday night. What I wanted to write here since that time has passed on from when I thought it important or at least depressed enough to think so. It appears another of my medicines had caused an allergic reaction that resulted in me wanting to simply give up. It has passed.

I don’t often give up. Not giving up has always been important to me. In the almost incessant fights I found myself in during my youth, I would not give up no matter how badly I was beaten. And, I was beaten most of the time.

During my years as a trial lawyer, I asked only to be assigned cases no one in the office would touch because they believed those cases were losers. I still managed to amass the third longest string of consecutive victories at the beginning of a career in the history of New York (while also losing my marriage because of my obsession).

I refused to be daunted by opposition from the medical profession and my own colleagues in setting up NY’s Mental Health Information Service that reformed NY’s mental health hospital system from the horror it inflicted on my mom and innumerable others. It became the model for the nation. That agency still exists today.

There was no option for me other than the approval of California’s Coastal Program as it was expected to be, and the successful establishment and financing of the innovative California Coastal Conservancy no matter the cost to me (another marriage) and to those that worked for me. That occupied 13 years of my life.

The same can be said for the law firm on whose management committee I served and obsessively fought against often unanimous opposition to alter the economic and social mores of the firm for the benefit of the workers, women attorney’s and the firm as a whole by, among other things, demonstrating that the health and profitability of the firm did not depend solely upon the efforts of those with the largest books of business who inevitably end up plundering the firm for their own benefit. The health of a firm depended as much upon the lowliest of paralegals and junior partners and that balanced practice groups are necessary in order to weather the effects of the various business cycles and that those groups adversely affected by a business cycle should not be punished by those groups benefiting from the cycle (e.g., bankruptcy and real estate often operate on opposing cycles).

As a member and later Chairman of California’s High Speed Rail Commission during a period when it appeared to be foundering, I put it back on track so to speak, by pushing through its EIR, changing its tendency for locating its stations at the edges of the cities to bringing them downtown where they would revitalize the communities, developing the concept of the HS network as a backbone transportation system for California whereby multiple regional transportation systems could connect to the downtown stations and service the entire region; and finally fighting against the rapacious efforts of the four of five large engineering firms who sought to control the process for their own benefit and who, I believe, can be blamed for much of the criticism HSR has been subject to since I was removed by Governor Schwarzenegger over the issue.

On the other hand, when I lost (most often a marriage), I usually ran away and started again and again somewhere else. From New York to Pennsylvania, to Rome Italy, to back to the US, to San Francisco, to Thailand, to The Golden Hills and now to the Enchanted Forest. In each place, often penniless, I licked my wounds, struggled with despair, indulged in excess and dreamed of renewal, a new life somehow somewhere, and ultimately I moved on. There was, however, even during these times always something I could not give up on, first Jason, then Jessica and now HRM. I may not always have been successful in their view, but I tried and they kept me more alive and happy than I am sure they believe I have benefitted them. But no more now, they are grown (perhaps not HRM) and despair now is reserved for those times when the pains and discomfort of my various maladies become too much and instead of not giving up, I sometimes long for the peace of oblivion.

Talk about depressing things, the HAC just towed our automobile again. I left them a nasty message and threatened to sue them.

B. UPDATE ON THE MYSTERIOUS ORB.

For those interested in the odd adventures of the Mysterious Orb, it has moved slightly from when it emerged from the bush behind which it had been hiding to show Nikki the way to our house. It has now rolled on a short way and appears to be intending to hide behind another bush to await for whatever the orb waits for next.

It moved from its hiding place behind the smaller bush on the right where it had hidden for a few weeks to the center of the space where Nikki saw it. The Orb has since then moved on toward the bush on the left. Whether it will choose to hide behind that bush or proceed on up the alleyway, I can only guess. I await the next episode in the adventures of the Odd and Mysterious Orb.

The Mysterious Orb —Photograph Taken From Our Garage.

Today about four days after the above was written, the Orb made its decision and is now well hidden behind the bush on the left.

A few days later, during an early morning walk, I passed by the alley where the Odd Orb was hiding. I noticed one of the Turkey Gangs pecking around that part of the alley near where the Orb was hiding. It got me thinking. Do you suppose it is the Turkey Gangs that are moving the Orb around? The birds are big enough to do so. If so, why? Another mystery.

C. OFF TO THE BIG ENDIVE ON THE BAY.

First, we bailed the car out of impoundment. I grumbled and plotted revenge on those I believed targeted me specifically. On the drive home in response to my complaints, Naida said, “I guess we know now that there is a wicked witch in the Enchanted Forest.”

Then we spent some time on our computers doing last minute things. Finally, we and the dog set off to the Big Endive on the Bay. We arrived at Peter’s house in late afternoon. My daughter arrived soon after. We had a pleasant evening reminiscing. Jessica planned to leave on Friday to go back to Washington DC. I will be sad to see her go I do not know when I will see her again.

The next day I met with my doctor and received the first glimmer of good news in at least the past three months. He said that cancer had shrunk enough to bring the possibility of an operation to remove it before the board of surgeons. They then efficiently scheduled all tests and my infusion to occur the remainder of the day.

That night we had dinner at a local Italian Restaurant that I used to enjoy when I lived in that neighborhood years ago. It used to cost about $10 for the same meal I enjoyed that night. Now, that same meal cost me $70. Nothing had changed but the wealth of those that now live in the neighborhood.

Later, Hiromi and my granddaughter Amanda arrived at Peter’s house for a visit.


D. BACK TO THE ENCHANTED FOREST.

We returned to the Enchanted Forest on Friday. On Saturday I drove into the Golden Hills to drive the Scooter Gang around. While we were driving HRM turned to me with a big smile on his face and said, “Pookie, I have a girlfriend.” How does one respond to that? I settled on, “Good for you” and high-fived him. Now I worry.

Among the books I have read so far this month was James Lee Burke’s most recent Robicheaux and Purcell saga. The boys are getting old — and they know it. They still, however, act like adolescents while Burke places in their minds the sorrows and sadness of aging heroes approaching their end. Although, the novel takes place by Bayou Teche in Louisiana and Monument Valley Arizona, the epilogue has Dave, Clete and Dave’s adopted daughter Alifair recovering from their efforts and injuries in a motel in Bodega Bay California and traveling up and down Highway One for entertainment.

Alas, I just got word that Lucia’s bar in Sacile, a place I always considered the happiest place on earth, is no more. It has succumbed to the downsizing of the nearby American military base and the Italian economy’s multi-year depression. Lucia is now working as a barista in one of the other cafes in the town. This is all so sad.

I am losing my hair as a result of the chemo. Great gobs of hair flitter down from my head often falling into my food as I eat, making it even more unappetizing than usual. It all amuses me. If it continues I will become the first person in my direct ancestry to go bald in at least five generations. My head looks like it is covered with down.

hemothera

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